Wednesday, November 26, 2008

Brogan and Down syndrome and his big sister

I don't know about anyone else - but when I look at my son, I just see how cute and beautiful he is.  Is there something wrong with parents of Ds kids?  I don't think so.  I really don't see anything wrong with our boy.  I want a recount.

I think my daughter is beautiful too, and she doesn't have Ds.  She adores her brother and thinks that he is a beautiful baby boy.  She's a little too young to understand that her brother has Ds, or even what that means.  She does know he is beautiful, he is hers, and she loves him.

We've gotten a few books about different kids for her to look at and we read them to her.  She's also been a part of the hop-a-thons for Jerry's kids.  It seems to me that she's indifferent to kids with disabilities - at least at this young age.  She just doesn't think they're different or weird.

She saw him through his days in the NICU, and it was hard for her.  I realized how hard when we were moving last month, and I had gone into the store to get her a "Moon Pie".  Her brother started crying, and she couldn't find a bottle, she couldn't show him a toy or do anything that would make him stop.  By the time that I got back to the car, SHE was crying.  When I asked her what was wrong, she said that "Brogan was crying and I couldn't make him stop!  I don't want him to go back to the hospital.".  

That made me feel like such a bad mom for including Audrey in the visits to Brogan in the NICU, but how could I not let her see her brother.  It's hard for her, but I told her that we take good care of him and he will be ok.  If he's crying, he's just upset and she knew that mommy would be right back.

It hurts my heart so much to see the effect all of this has had on her.  She is my precious darling girl - long awaited for.  Brogan is my precious darling boy - also very long awaited for and very wanted.

Audrey and Brogan, June 6 2008

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